That time I met Richey Edwards (the lighter side of psychosis)

December 31, 2008

While talking to a friend last night, I was reminded of one of my “good” hallucinations. It happened sometime last year, obviously prior to my breakdown, and before the time when I fully realized all of my symptoms the way that I do now.

I was lying in bed one night trying to get to sleep when I saw the shadowy figure of a man sitting in the corner of my room. It frightened me, but I also knew it wasn’t real (on some level), so I pulled my blanket up more over my face and tried to force myself to sleep. It didn’t really work though. I kept thinking of him sitting there, and every time I opened my eyes, he was there. Eventually, I managed to close my eyes for quite a while and started to drift off to sleep. That’s when I felt my hair being moved away from my face and tucked behind my ear. My eyes shot open and I sunk back into my bed, gripping my blanket to my face. The figure was hovering over me, and I knew then that it was Richey Edwards. I was terrified at first, but then I was overcome by a sense of calm. He wasn’t there to hurt me; he was thanking me for keeping his memory alive in others (I’m heavily involved in the Manic Street Preacher fandom online, for those who don’t know).

At the time, I knew this episode wasn’t really real, but I was slightly concerned with how real it had felt. I didn’t worry too much though because it had been something fairly nice to experience.

Week later, I was reading an old interview of Richey’s, and (I believe) he was discussing sex with groupies, and how women don’t expect to be treated very well in that scenario, so little things like brushing the hair out of their eyes or other tender gestures tend to take them by surprise. I think my jaw hit the floor at that moment.

I don’t honestly believe that what I saw was some kind of ghost or actually real in any way, but so far this is the only story I’ve got where a hallucination was somewhat entertaining & “good” (albeit somewhat embarrassing).


December 30, 2008

I just ended my relationship with my boyfriend because I couldn’t stand his lack of support anymore. He finally answered his phone this afternoon, and we talked for about an hour, and almost everything he said just further cemented the fact that we just cannot work. He believes that I’m doing better handling my issues on my own, but I disagree. I don’t think couples need to share every aspect of their lives together, but I think when it comes to an issue like my mental health, the other person should play a role in the fight against it. I need that support if I’m in a relationship with someone. I don’t mean to say that I’m a clingy person and I think relationships solve everything, because they don’t; it’s just that I was receiving zero support from him, and that’s just inexcusable. The bottom line is that he has his own issues he’s afraid to confront, and he’s been avoiding me because I remind him of them while I’m facing my own.

Right now, this is all a huge weight off my shoulders and I feel quite relieved, but I know it’s going to hit me eventually and be incredibly painful. We’ve had a strange relationship that’s spanned over years, and it hurts that this is how it’s ending. We met in an art class in 2003 and hit it off really well. Then, in 2005, he walked out of my life without notice and it really, really fucked me up. I later found out he went to live in Germany with another woman. We ran into each other (quite literally, on a crowded sidewalk) earlier this year, and I somehow was able to mostly forgive him for everything and rekindle our relationship. We had a good run for a few months, but it eventually started to fall apart, and now it’s over.

I refuse to allow this to screw me up as much as it did before. I have a better focus on certain goals now than I did then, and I have an amazing support system. I can make it through this.


Bits and Pieces

December 28, 2008

My mom stayed home this weekend with me and everything was quiet, thankfully. I haven’t fell fully stable, but I have felt small improvements. I think my medication may need to be changed, but I’m waiting a few more days before I call my psychiatrist.

I don’t know if I’ll ever fully be able to accept all of this. I know the my hallucinations and delusions and such aren’t real, yet I still can’t believe that it all exists in my head. It’s hard for me to realize that nobody else knows of these things; that they only exist to me.

Lately, what seems to bother me most is a fear of everything being poisoned, my legs snapping in half, the cats spying on me, and my fear of being shot in the head. I talk myself through them, but it’s difficult and terrifying, regardless, because I never feel I can escape these feelings fully.

What’s most been bothering me lately is my boyfriend’s absence. We agreed a few weeks ago to take a break from seeing each other so we could work on our individual issues better. I was fine with it for a while, but now I’m not. We’re still together, but I wonder if we’re going to work or not. I don’t want to go into great detail about this now, but we’ve had issues in the past, and I’m wondering if this might be a repeat of what happened then. I hope not, but I don’t know. I tried calling his cell phone the other day, but it was turned off, and I was too afraid to call his house phone after that. The last time we spoke, he wasn’t in a good mood and he said some pretty shitty things to me, so that’s why I’m hesitant to speak with him. I have enough going on and I don’t need his moods to bring me down further. I just wish I knew what exactly was going on. We have different views on how to treat mental illness, and I think that might ultimately be the end of us. I don’t know though. I try not to think about this too much. I have a wonderful support system without him, and that’s what really matters the most.


I scream, you scream, we all scream for …

December 26, 2008

My therapist doesn’t want me to be alone this weekend, so we’re trying to figure out who can stay with me. This type of stuff is probably the worst part of dealing with a mental illness. I feel like a twat for inconveniencing everyone, and I have nothing physical to show for how I’m doing, like someone with a broken leg would. I can’t even say if I’ll be okay or not because I don’t know.

I’m trying to better understand my emotions. I have somewhat of a blunted affect when it comes to them. I used to be extremely over-emotional during my teen years, but I’ve slowly become more numb / apathetic as times passes. I have to watch for physical clues (how I eat, if I’m sleeping too much, losing interest in things, etc) in order to understand how I feel. If I feel anything intensely anymore, it’s usually depression, and it’s usually a side effect of my medication (like what happened the other night). It’s annoying to not really know yourself, but I’m working on figuring it out.

Anyway, I have lots of support right now, which is really nice, and my mom and I are going out to get ice cream soon. Not everything is shit.


I believe I can see the future / cos I repeat the same routine

December 26, 2008

I liked being on zyprexa (anti-psychotic) at first, but after having my dosage increased in the hospital, I’ve been having loads of crappy side effects. I’m calling my psychiatrist on Monday to sort out this issue. It’s so frustrating to go through this cycle of trial and error. I thought I’d stopped it once I was on geodon, but after a few months on it, it started to give me really awful side effects. That’s when I just stopped taking it cold turkey, without the doctor’s approval, and everything went to shit.

I’m not sure how far to plan ahead in my life right now. I want to attend classes next semester, but I want to feel like I’m fairly stable and with a combination of medication that will allow me to function properly. The worst side effects that I get are suicidal thoughts / depression and akathisia. Akathisia makes you want to bang your face into a wall repeatedly and kill people. It’s a very intense feeling of uneasiness, and when it happens to me, I pretty much want to kill myself. The last time it happened was during my hospitalization; I was lying in bed and I couldn’t get comfortable no matter what position I laid in. I kept pulling at the skin on my face and arms in order to calm myself down. It was fucking awful.

Anyway, the only side effects I’m experiencing now are slight weight gain and pretty severe fatigue in the mornings. I just slept for quite a while, even though I slept through the night. Ugh.

I feel okay right now though. I got through yesterday without incident and today seems to be going in the same direction (aside from the sleeping). I’m seeing my therapist in a few hours for an emergency session because of my recent hospitalization. I like my therapist, so I’m looking to it. Talking through things really helps me.

For what it’s worth, I’ve done these two drawings last night / today:

I like it rough

horrorhorror


Merry Christmas!

December 25, 2008

Despite everything, I had a really nice day today. I was really groggy from my meds for quite a while, but my moods stayed stable, unlike yesterday. My brother and I went to our dad’s house to open gifts and eat dinner with some family and friends. Then we came back to our mom’s house to open gifts, and I fell asleep for a bit afterward.

I’d rather not write anything lengthy here tonight. I just wanted to add something positive after yesterday.

I hope all of you had a good Christmas as well, and thanks for your support.

xx


It’s a Wonderful Life

December 24, 2008

The nurse who I talked to on the phone earlier came by unexpectedly just now to give us presents and see how I was doing. We hugged a lot and I thanked her numerous times for helping calm me down earlier. She gave me a huge piece of cake and a present of various body lotion / soaps and home-made cherry jam. It was so incredibly nice and made my awful day so much better.


SSDD

December 24, 2008

Today has been really awful. I’m having horrible side effects from my medication being increased, along with stuff in my life that’s just not going well, and it’s made me absolutely psychotic. I just threw myself on my bed and was crying and screaming because I hurt so much and wanted to kill myself. My mom phoned a friend of hers who used to be a psych nurse and she talked me down from my hysteria. I feel calm again now and more put together; I just hope it lasts.

I’m so sick of this shit.


Apologies for my absence

December 23, 2008

Last Friday I had some kind of psychotic episode and checked myself in to the hospital where I stayed until this afternoon.

It happened out of nowhere. One minute, I was fine. The next, I was cutting up my left arm and chest. Well, I was doing it, but I didn’t want to. It was the first time since January/February that I felt the presence of “them” (the creatures/voices). They kept sending me severely self-destructive thoughts, and I was afraid that I’d die if I didn’t put myself in the hospital.

Contrary to popular belief, these kinds of events aren’t extremely melodramatic (at least in my case). I very calmly showered and put together a backpack full of things for my stay before my mom got home, and then we went out to get something to eat, since we knew we were in for a long night in the emergency room.

We were in the ER for six hours before I was finally admitted. We spent about an hour and a half in the waiting room, and the rest of the time in a room. My mom got the worst part of that, cos although I was having a shit ton of blood taken and nurses prodding me every so often for whatever, I was in a bed; she was in a chair. We eventually turned the TV on in the room and that helped pass the time.

Honestly, a lot of it was severely humiliating. One of the nurses cleaned my wounds and wrapped them and I felt like such a fuckhead. To me, I hadn’t hurt myself, it was them, but I knew on some level that wasn’t the truth and I’d done it to myself. Then I talked to a doctor about my hallucinations, with my mom sitting to the side of me. I stopped even saying that I could tell the difference between real reality and my reality because I thought it was just complicating everything. Even if I can tell that things aren’t real real, I still respond to them sometimes; it’s like watching a 3D film and screaming when something “jumps” off the screen, though you know it’s not really going to harm you. So I sat in my bed gesturing madly and doing my best to describe my “creatures” (I had to do this so many times during my stay). I felt like such a crazy fucker and I kept imaging how I would feel if my mom and I switched places and I were witnessing all of this from my daughter. We kept being asked about a family history of mental illness and we had no real answers. I’m the first person to really be diagnosed with anything. So while we’re sure there’s a history of something, there’s nothing concrete. My mom’s uncle killed himself, but her dad died (of natural causes) when she was a baby, so we don’t have details of why he committed suicide.

Eventually, I was put in a hospital gown and wheeled up to the ward, which made me feel even worse. I found out later that I’d been Baker Acted by the hospital for about a day (because I’d come in through the ER and they apparently do this to anyone they feel needs it). I signed myself in as a voluntary patient my second night there.

The last time I was at this particular hospital, I was sixteen and put in the juvenile ward. I always feared the adult ward because my dad used to work there and only ever had horrible stories of patients committing suicide or having to be severely restrained. I’m not really comfortable going in to massive detail about everything that went on while I was there though, for two reasons; the first reason is that I don’t want to think about some of it and the second reason is because it makes me feel like I’m turning this all into some kind of show for entertainment. It’s not that I think all of you view it that way, it’s just how I feel about it in general. I kept thinking of all the people who’ve only seen mental health facilities through movies like Girl, Interrupted or One Flew Over the Cuckoo’s Nest and think it’s all really awesome and crazy people are really interesting and something to aspire to be. When the patients from these films are standing right in front of you, it’s not entertaining anymore. It’s fucking sad. A woman came in last night who was dealing with severe psychosis, and she was put in a geri chair to restrain her. She slid out of it once and was sitting on the floor. Her hair was disheveled and she barely spoke. I kept watching her and thinking about she was someone’s mother (the son or daughter had called earlier asking how she was doing), and how upset I would be if that were my mother sitting there.

Anyway, it wasn’t all bad. I’m doing better now than I was a few days ago. This is the second episode like this that has happened, so I doubt it’s the last time I’ll have to deal with this type of thing, but I hope next time I’ll have the good sense to call someone before I cut myself.

The social worker who held one of the groups this morning said she liked how I talked about my mental illness how a diabetic talks about managing his or her diabetes. I had some good conversations with some of the other patients as well. After one of the group meetings, a woman came up to me and said she’d been diagnosed as schizoaffective as well and we talked briefly about that. Another woman who was in her 50s talked to me about cutting.

I suppose the only difficult thing I felt through all of this was that nobody else much knew what I was talking about when I’d describe my situation. Most people associate cutting with depression, but I’m not depressed, and my self-mutilation wasn’t spurred on by self-hatred in any form. I mostly only deal with psychotic symptoms anymore, but because I’m so competent, it’s hard for people to really believe me. I’m really polite to staff members as well, which further screws me, probably.

Anyway, it’s good to be home, and thank God I didn’t have to stay locked up through Christmas. My meds were upped and that seems to be going all right so far, so hopefully it stays that way.


Don’t be ashamed

December 19, 2008

I’ve had numerous people call me “brave” for keeping this blog and being so open about my illness. It struck me as odd at first, but then I realized that a lot of people are afraid of discussing their mental health with anyone (aside from doctors and such). When I was a child dealing with therapy and medication, I kept it a secret too, but as I grew older, I became more outspoken about it, and I obviously still am. This is part of who I am, and I want people to understand that. I’m not saying that I put my hand to shake upon first meeting someone and loudly state, “Hi, I have schizoaffective disorder!” but I don’t dance around the issue if it should come up in a conversation where it would be appropriate for me to talk about it.

I understand that not everybody wants to be so open about these issues, and there’s nothing wrong with that, but what I wish would stop is people feeling bad about themselves because of their disorders. If you are dealing with a mental illness, it is not your fault. You have nothing to be ashamed of! You didn’t choose to be put in this situation. Don’t blame yourself or put yourself down; you’re already going through enough, don’t torture yourself further.

This feels like some kind of public service announcement.

Just don’t be so hard on yourselves, okay?

xx